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A baby has become one of the first to be given a potentially life-saving drug on the NHS for a devastating spinal condition.

The parents of three-month-old Riley Cadle-Birch were told he had a severe form of spinal muscular atrophy, which causes progressive muscle weakness, loss of movement and difficulty breathing.

Babies suffer progressive muscle weakness, loss of movement, difficulty breathing and without a new drug – dubbed the most expensive in the world – have a life expectancy of just two years.

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